Hi friends, by now I’m sure you have gathered together a picture of my illness myalgic encephalomyelitis or ME. I prefer this name over chronic fatigue syndrome as that name has words the common person can quickly define and relate, to when in fact, this illness is far less relatable or comprehensible than the common word and feeling of fatigue.

As I am confined to my bed limited by energy and PEM, I find that I am bursting with emotions and feelings and that writing or sharing them help. And as I can no longer visit as freely as I wish I could, I want to keep many of you updated on my health and my thoughts are feelings that come with it. So here is a look into my tragedy. I know I have found a lot of strength in the stories of other trials so maybe here you too can feel less lonely with the burdens you carry.